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Author: Subject: Another epileptic fit
nick205

posted on 17/5/16 at 09:49 AM Reply With Quote
Another epileptic fit

Ar5e biscuits

Went on my turbo trainer in the garage last night and turned in 6.50 miles in 20.0 mins. Pleased with that and off the bike, but suffered another epileptic fit and SWMBO found me on the garage floor in a pile of bikes and kids scooters. No damage to me personally, apart from the start of another 12 months no driving, so all's well really - just a PITA to be swallowing two types of anti-seizure drugs twice a day and still having them.

as they say, life could be worse, I'm still walking, talking and working!






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prawnabie

posted on 17/5/16 at 09:55 AM Reply With Quote
Bugger!

Now this is in no way a dig, just advice on what I see! You seem to be putting a lot of focus on "driving again in 12 months". Maybe that is causing underlying stress that isn't helping the situation? Maybe having a few weeks off work and some R+R time may benefit you if that is feasible? As I am not a medical professional and have no knowledge of epilepsy, I have no idea what you are going through, so disregard this if I am totally off the mark!

Hope you manage to sort it soon!

Shaun

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gary gsx

posted on 17/5/16 at 10:11 AM Reply With Quote
Mate sorry to hear that..

Flip side of the coin you was in garage and not out on the road.

I hate my turbo trainer bores the shxxe out me

Hope things get sorted soon

Gary

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britishtrident

posted on 17/5/16 at 10:56 AM Reply With Quote
S@@@ happens --- sorry you had more rotten bad luck.
You have my sympathy a diabetic I am very much aware of similar issues and the implications for driving.





[I] What use our work, Bennet, if we cannot care for those we love? .
― From BBC TV/Amazon's Ripper Street.
[/I]

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hizzi

posted on 17/5/16 at 12:16 PM Reply With Quote
look on the bright side, we buried my mates wife this morning 40 year old leaving a nine year old kid and my other mate is having 11 hours of cancer surgery today.
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nick205

posted on 17/5/16 at 12:52 PM Reply With Quote
Thanks for the good wishes and yes...life could be so much worse.

WRT driving a big part of it is that I drove for a living before in sales. That's had to end as has being alone with my kids in case of a fit. It's getting harder to take and I'm realising now just how much I used to drive - can't take my kids to/from cubs, judo etc, which puts a lot of work on other people.

I have a meeting with the epilepsy nurse next month, but being honest I don't see much new coming from it.

SWMBO does question my putting the information online, but I see it as a way of widening the experience and gaining some useful input from other people.






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leew2

posted on 17/5/16 at 06:21 PM Reply With Quote
Have you considered building a pedal powered vehicle?
You do not need a driving license to drive a pedal powered vehicle and the relative mass and typical speeds of such a vehicle means it poses substantially less risk to the public should it go out of control than a normal full sized combustion engine car.
I have a friend with Epilepsy who had suffered several blackouts, including some while cycling, leading to several accidents. After an accident involving a broken leg and facial injuries, I built him a specially adapted pedal powered vehicle which he currently uses as his everyday transport. The vehicle is based on a Quest XS chassis, a commercially made vehicle sold by www.velomobiel.nl. To reduce the risk of injury to the rider in the event of a blackout I made the following modifications to the vehicle:
1: I added additional CF and Kevlar strengthening to the chassis including an Aluminum Honeycomb front bulkhead and PU foam based crumple zone.
2: I added a 5 point seatbelt to restrain the rider and allow the vehicle to absorb any crash energy.
3: The most important adaptation is an electronic rider vigilance device, this is a small black box I installed in the vehicle which constantly monitors the pedaling cadence. If the rider does not pedal for a 2 seconds or push and hold an override button then an alarm will sound. If the alarm is not cancelled within 3 seconds (time can be changed) then the hazard warning lights are automatically activated and an electronic linear actuator applies the brakes to stop the vehicle.

This vehicle has given his independence back and he said it has made life worth living
Despite it's rather hefty mass of over 40kg, it can still be pedaled at about 20mph on the flat at a comfortable effort level which a moderately fit rider can sustain for a few hours. If you are not very fit, or live in a very hilly area then you could consider adding an electric assist motor. Providing it has functional pedals, the motor power output is less than 250w and the max speed is electronically limited to 25km/h (15.5mph) then the vehicle is still legally a pedal cycle and does not require registration or a license.

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hizzi

posted on 17/5/16 at 08:41 PM Reply With Quote
what he said, forgot about those rules we used to have a neighbour who was registered blind and they took his liscense away, he could see shaddows so got himself a sinclair c5 to drive to the shops, police stopped him all the time but couldnt touch him it was hilarious to watch, his widow had it in the garden till recently
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Volvorsport

posted on 17/5/16 at 11:15 PM Reply With Quote
Diy reverse trike plans 12.99 on ebay





www.dbsmotorsport.co.uk
getting dirty under a bus

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britishtrident

posted on 18/5/16 at 07:59 AM Reply With Quote
Putting it online is a good thing I know when I was diagnosed diabetic it was support from a diabetes forum(*) that got me through, it may be helpful to find a good epilepsy forum.
Driving is a very powerful very addictive drug having to go cold turkey can't be easy. Going by my own experience and reports from others with my condition specialist nurse practitioners seem to vary an awful in ability and suitabilty for the job (mine is brill) I hope yours is one of the better ones.

I am pretty sure there must be a lot of junior builders in your area who would appreciate your experience and support a poor substitute I know for the real thing but....



(*) For anybody with diabetes concerns I highly recommend---- http://www.diabetes.co.uk





[I] What use our work, Bennet, if we cannot care for those we love? .
― From BBC TV/Amazon's Ripper Street.
[/I]

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nick205

posted on 18/5/16 at 09:24 AM Reply With Quote
quote:
Originally posted by britishtrident
Putting it online is a good thing I know when I was diagnosed diabetic it was support from a diabetes forum(*) that got me through, it may be helpful to find a good epilepsy forum.
Driving is a very powerful very addictive drug having to go cold turkey can't be easy. Going by my own experience and reports from others with my condition specialist nurse practitioners seem to vary an awful in ability and suitabilty for the job (mine is brill) I hope yours is one of the better ones.

I am pretty sure there must be a lot of junior builders in your area who would appreciate your experience and support a poor substitute I know for the real thing but....



(*) For anybody with diabetes concerns I highly recommend---- http://www.diabetes.co.uk



Good point - my epileptic nurse is very good, but badly stretched across Hampshire.

On the subject of pedal vehicles I am a very keen cyclist (with more than one bike), but now the prospect of suffering an unconscious fit (and crash) whilst cycling on the road doesn't fill me with confidence. I've cycled off road OK, but whilst a fit and crash would not be good it would be relatively safer than a tarmac road.






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SJ

posted on 18/5/16 at 09:54 AM Reply With Quote
Hope things improve - I manage to fall off my bike enough without epilepsy!

I quite like the look of these: Link

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MikeR

posted on 18/5/16 at 12:01 PM Reply With Quote
Sorry to hear the news and glad to hear your ok.

Be careful this doesn't lead to depression (far easier said than done) - you and your family have got enough to contend with.

the trike idea sounds like a winner along with the junior builder support.... if you were local you'd be welcome round mine if only to give me an excuse to get in the garage and get cracking.

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