I don't know if you would be interested but if you would like to donate some money, this is am excellent cause.
Susanne who works for me, has a son - Joe age 4 who has this condition and it expected that he will be confined to a wheelchair in a very few years
and his life expectancy is not much beyond 20.
Muscular Dystrophy doesn't affect many kids and as a result it is very underfunded by the NHS. There is one specialist for the north of England
who is only half funded by the NHS and the other half is funded by charitable donations. There is also a need for funds for research and hence Darren
(Joe's father) is jumping out of a perfectly good aeroplane (with a parachute) to raise some funds.
Please give something if you can.
Thanks
Mark
link to just giving web site