mistergrumpy
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| posted on 1/11/08 at 10:11 AM |
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Its a good idea or we could have some kind of Top Gear challenge/race in them?
Or a relay John O Groats to Lands Endor summat.
Mind most of us on here are struggling to build just one car 
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russbost
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| posted on 1/11/08 at 01:53 PM |
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Further to the above I emailed my MP & got the following reply:-
"Many thanks for this link. I was not aware of this issue and will look into it.
Very best wishes and thanks again."
If we all emailed our MP's I think you would automatically raise the issue to at least an inspection by the House of Commons, probably by far
the most likely way to get decent funding.
I no longer run Furore Products or Furore Cars Ltd, but would still highly recommend them for Acewell dashes, projector headlights, dominator
headlights, indicators, mirrors etc, best prices in the UK! Take a look at http://www.furoreproducts.co.uk/ or find more parts on Ebay, user names
furoreltd & furoreproducts, discounts available for LCB users.
Don't forget Stainless Steel Braided brake hoses, made to your exact requirements in any of around 16 colours.
http://shop.ebay.co.uk/furoreproducts/m.html?_dmd=1&_ipg=50&_sop=12&_rdc=1
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NOTE:This user is registered as a LocostBuilders trader and may offer commercial services to other users
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sonic
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| posted on 2/11/08 at 04:56 PM |
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To be honest the best thing would be for people on here to get together and design/build the equipment these kid's need.
Instead of people/companies ripping people off when having to buy and fund them.
There are some very clever people on here with a wide range of skills and equipment.i also read on another post about somebody setting up a business
building kitcars,forget it and start looking at what is required here.
Thanks
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owelly
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| posted on 3/11/08 at 08:12 PM |
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Greetings!!
I've spoken to Emlyns folks and they are adamant that they would like any donations to go to Rett Syndrome Research Trust. There is a page on
there where you can donate in Emlyns name
http://www.rsrt.org/news/Sponsor-A-Drug-2.html
I've already donated some cash to sponsor a drug as that seems to be the way forward for everyone with Retts, but if you want to send a donation
to me via paypal at owelly'at'fsmail'dot'net then I'll either add it together to sponsor another drug, or pass it on to
the Coates family, whatever you wish.
I'm really touched that so many folks have responded and so too are Emlyns folks!!
Many thanks, Owelly.
http://www.ppcmag.co.uk
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andrews_45
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| posted on 3/11/08 at 08:54 PM |
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God bless, if anybody is interested in building a locost to auction off and raise money for the trust, I'd be happy to donate some spares
towards the build...
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Jason Fletcher
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| posted on 4/11/08 at 10:21 PM |
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Owelly
I know in your first post you stated you were after money but it seems there are a lot of people on here who would like to offer a few quid towards
maybe getting this £1200 walking frame..
Have you considered using Just giving ?
I would be happy to make a donation if you did.
Jason
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owelly
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| posted on 4/11/08 at 10:35 PM |
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I've had an excellent idea for a bit of fun and fundraising! Watch this space.....
http://www.ppcmag.co.uk
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owelly
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| posted on 8/11/08 at 07:06 PM |
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But until I hatch my excellent(ish) plan, here's Emlyn and Co on the local news!!
http://www.itvlocal.com/tynetees/?player=TYN_HomePage_15&void=254099
http://www.ppcmag.co.uk
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owelly
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| posted on 1/5/13 at 02:26 PM |
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Just a quick thread ressurection to update any interested parties!
OK, so the links from 5 years ago probably won't work but the message is still the same : but with a just giving link... ;-)
A lot has happened for Emlyn and her family since 2008. And a lot more has happened for the other Rett girls but here's a bit about Emlyn and
what she is willing to do to help where she can!! (Kori is Emlyns mum. Or mom as she's Canadian!)
https://www.justgiving.com/Kori-Dryhurst-Coates/
Still, this isn't a begging post but if you do have a couple of quid and a heart........ :-)
Thankyou. Owelly.
http://www.ppcmag.co.uk
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T66
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| posted on 1/5/13 at 04:57 PM |
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Owelly - Happy to help with a donation for mobility aids/support etc.
Donation sent
Ivan
[Edited on 1/5/13 by T66]
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owelly
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| posted on 1/5/13 at 05:13 PM |
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Cheers Ivan! You 've probably seen my Rett tweets!
Here's Emlyns mums blog:
http://lifeloveand.com/2013/05/01/team-whitby-home/
http://www.ppcmag.co.uk
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timbedford
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| posted on 1/5/13 at 06:44 PM |
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Some kind of lands end to john o'groats rally run thing would be great. People could join in and drop back out on stretches of the run that suit
them and their vehicles. If all entrants had to pay £50 and secure a minimum of £500 in sponsorship, and lets say just two hundred people did it, well
that'd... That would be, now then...err, hang on... 60... times, five, plus, errrr...Let me just... 14....Carry the 8 over, ah... Hang on, here
we go look, minus 12... Times three, equals
60?
SIXTY!
LETS DO IT.
I'd be up for that. I could drag a load of sponsorship up and a load of people in oddly shaped vehicles to participate.
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MikeR
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| posted on 1/5/13 at 08:36 PM |
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I've just read this for the first time - i didn't watch the video as with a 2 year old and 6 month old I couldn't bring myself to.
Do you have a current page that donations can be made to?
Edit - found the link and donated.
[Edited on 1/5/13 by MikeR]
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T66
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| posted on 1/5/13 at 09:24 PM |
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quote:
Originally posted by owelly
Cheers Ivan! You 've probably seen my Rett tweets!
Here's Emlyns mums blog:
http://lifeloveand.com/2013/05/01/team-whitby-home/
It does put things into perspective, when you see what others have to deal with.
If the family are ever up my way and Emmy would be interested in a look over my job helicopter, let me know.
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owelly
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| posted on 1/5/13 at 09:26 PM |
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The original link no longer works as i was postd in 2008 and things have really moved on! I shall find a more up to date clip!
Many thanks to all those who are taking the time to read this and a bigger thanks to those who are wanting to donate.
https://www.justgiving.com/Kori-Dryhurst-Coates/
http://www.ppcmag.co.uk
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owelly
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| posted on 1/5/13 at 09:42 PM |
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To be honest Ivan, unless the helicopter was painted in whichever Disney character she was currently into, I doubt she would be too interested!
It's very kind of you to offer and I'll pass it onto the family.
http://www.ppcmag.co.uk
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T66
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| posted on 1/5/13 at 09:54 PM |
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No worries this end, totally get what your saying.
cheers
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neilp1
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| posted on 2/5/13 at 07:42 AM |
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Just read the thread!
Donation sent
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owelly
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| posted on 2/5/13 at 08:22 AM |
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Thankyou.
http://www.ppcmag.co.uk
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